Support Rob BBQ – Raising Money – Narcolepsy UK

Robs Story 

5 years ago Robs daughter was diagnosed with Narcolepsy and Cataplexy, a rare neurological condition which affects just 1 in 2000 people. Approximately 3 million people have this condition worldwide. The most common symptoms is uncontrollable tiredness but the condition is so much more than that.

A few years ago Rob did a 36 hr live on Instagram. He stayed awake, cooked up a storm on the BBQ and talked to lots of people from around the world for 36hrs straight! Why 36hrs? Well someone with narcolepsy feels like they’ve been awake for 36hrs every single day. That is why he has picked a 36 hr live, so he can experience what his 11 year old daughter feels like day in day out.

There is so little awareness about this condition and Robs goal is to bring that awareness, get people talking about it and raise as much money he can in doing so. Narcolepsy UK have been outstanding in supporting Rob and his family in their journey. He is using this time to give just a little bit back to the charity he holds close to his heart.

If you are wanting to follow Robs Journey further then please follow the links below to his Instagram Account. Not only raising money for charity but an amazing place to gain knowledge and inspiration with everything BBQ. Making a donation is quick, easy and a secure process thanks to Give as you live donate. They will take your donation and pass it onto Narcolepsy UK. At Auldton stoves we have donated a Masterbuilt 560 Gravity Series with a Masterbuilt Cover and Charcoal. I am sure Rob and his family would be so thankful for any donation big or small. He has started his Live Video today so why not drop on to support him.

Robert Stevens (@robs_bbq) • Instagram photos and videos

Roberto Stevens is fundraising for Narcolepsy UK | Give as you Live Donate

P.S Rob will be coming to Scotland for a special BBQ Masterclass so keep an eye out on our website events Page.